This is the drain tube that ran to her chest. I wanted to keep it as an ornament for the Christmas tree... Amanda vetoed it. Some people just have no sense of humor!
-- Post From My iPhone
This Blog was created to help us tell the story of our daughter Bayta and her batles with a rare birth defect called Omphalocele. She is now home but has an even rarer diagnosis of Pentology of Cantrell. It is our desire that this blog, the good the bad and the ugly parts, can be used by other families to help guide them through the scariest experiences of their lives!