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This Blog was created to help us tell the story of our daughter Bayta and her batles with a rare birth defect called Omphalocele. She is now home but has an even rarer diagnosis of Pentology of Cantrell. It is our desire that this blog, the good the bad and the ugly parts, can be used by other families to help guide them through the scariest experiences of their lives!
The Family
Followers
About Me
Omphalocele Web Pages
Blog Archive
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2009
(261)
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November
(40)
- Bayta continues to eat, poop and sleep
- It is 10 on November 5th
- WE ARE HOME!!!!!!!!
- Big announcement......
- Our bill so far......
- Funny story.......
- The fifth element
- Big announcement tonight!!!
- This sign has taunted us
- Late weigh in
- Sorry Judy
- Bayta screening out noises
- Eating a smoothie waiting for a weigh in
- Wake up Bayta! Time to eat!
- Project "Bass Pro"
- Morning rounds (day 17)
- Can't wait to play with my brothers!
- Good morning!!! (day 17)
- Tonights weigh in day (16)
- Night rounds (day 16)
- Surgeons out of her diaper tomorrow
- Just looking around (day 16)
- A shot in the dark made my day! (day 16)
- What are the odds?
- last night was hard (Day 16)
- Tonights weigh in
- All these people have to agree
- To do list (day 15)
- Just got done with feeding and rounds
- Allena
- Bayta's weight (day 15)
- Happy Halloween!
- Our little pooh bear!
- Mystery gift
- Lost blog posts
- Updates (Day 14)
- Allena
- More bling for Amanda
- Difficult patient
- Back in the hospital again
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November
(40)
Welcome friends and family
Thank you for viewing our blog. We wanted to thank everyone for all their prayers and kind words... but we were getting overwhelmed... so we started this blog. If we don't answer your questions then send us a line and we will try to update the page regularly. Bayta is now at home. She has a small scar and a slightly imperfect belly button to show from her ordeal. Her father has more gray hairs than he would like to admit. If you have a child with an Omphalocele, gastroschisis, or Pentology of Cantrell call us and we will be happy to talk to what we have been through. If you have a question about Bayta, us, Children's Hospital in St. Louis, Ronald McDonald House, our Doctors, our Nurses, or the defects listed above email me Lawyer4rent@gmail.com.
Just to let you know, we have a son, now 26 years old, who in Dec 1982 was born two months early with a very large omphalocele. In his case, only his heart and lungs were inside his body. This was not pre-diagnosed. And he weighed only 3.4lbs at birth. Imagine the technology changes in the past two decades plus. So, have faith and hang in there. We have a very healthy active college graduate who is a terrific young man. We linked to your blog from Ellis' blog, whose parents know our son.
ReplyDeleteMike & Barbara
Start massaging. There are several studies that show massage in preemies accelerates weight gain. Also Darick you are so sweet, my husband is still trying to convince me that his appendectomy (laproscopic) was more of a major surgery than my c section :) We are thinking about you! Amanda we miss you! Hurry back!
ReplyDeleteKelly
Darick & Amanda, am reading Darick's blog every day and sending love and prayers to you and little Bayta. The grandmas were great and brought the boys to your old hood for Halloween, what a treat. Hang in there, you'll be home in no time...Miss C.
ReplyDelete