biggest baby yet....
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This Blog was created to help us tell the story of our daughter Bayta and her batles with a rare birth defect called Omphalocele. She is now home but has an even rarer diagnosis of Pentology of Cantrell. It is our desire that this blog, the good the bad and the ugly parts, can be used by other families to help guide them through the scariest experiences of their lives!
The Family
Followers
About Me
Omphalocele Web Pages
Blog Archive
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2009
(261)
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September
(19)
- 3rd to Last Springfield exam (18 days to bayta)
- Here is a picture of how Amanda feels!
- Thank you Adam
- Another photo test
- Another picture test
- Thanks Tammy and Judy
- Tweaking the blog (20 days till Bayta)
- Can't Sleep (21 days till Bayta)
- The weigh in!
- Harrison hacking network
- Tom Harvey Passed Away
- "Vague and Contingent"
- Now... Can I send pics?
- This is a test of my mobile blog
- Way to go guys...
- 30 days and counting!
- Technical difficulties
- My Mother in Law
- Neat blog from another mother of an omphalacele (MOO)
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September
(19)
Welcome friends and family
Thank you for viewing our blog. We wanted to thank everyone for all their prayers and kind words... but we were getting overwhelmed... so we started this blog. If we don't answer your questions then send us a line and we will try to update the page regularly. Bayta is now at home. She has a small scar and a slightly imperfect belly button to show from her ordeal. Her father has more gray hairs than he would like to admit. If you have a child with an Omphalocele, gastroschisis, or Pentology of Cantrell call us and we will be happy to talk to what we have been through. If you have a question about Bayta, us, Children's Hospital in St. Louis, Ronald McDonald House, our Doctors, our Nurses, or the defects listed above email me Lawyer4rent@gmail.com.
It was wonderful meeting you all yesterday! I can't wait to meet that precious girl of yours. That's cool that we will be in St. Louis at the same time!
ReplyDeleteHugs - Tiff (the fairy "O" Mother)